Meet the Taskforce
Core Leadership Team
Committee Chairs
-

Advocacy Committee Co-Chair
Kerri Machut, MD
Attending Neonatologist,
Lurie Children’s Hospital
Associate Professor,
Feinberg School of Medicine at Northwestern University -

Advocacy Committee Co-Chair
Nicole Nyberg, MSN, APRN, NNP-BC
Neonatal Nurse Practitioner,
Cone Health
Founder,
Empowering NICU Parents & The Empowering NICU Parents Podcast -

Equity, Diversity, Inclusion, & Belonging Committee Co-Chair
Jessi Barnes, MSN, RN, RNC-NIC, NPD-BC, C-ELBW
Neonatal Outreach Coordinator,
Atlanta Perinatal Region
Emory University School of Medicine, Department of Pediatrics
NICU Clinical Nurse Educator
Grady Memorial Hospital
NICU Parent -

Equity, Diversity, Inclusion, & Belonging Committee Co-Chair
Mia Malcolm, BS, CDFT
Community Outreach & Programs Care Manager,
Ollie Hinkle Heart Foundation
Senior Research Coordinator,
Washington University School of Medicine
Clinical Research Coordinator,
Stanford University School of Medicine -

Marketing & Communications Committee Co-Chair
Daphna Barbeau, MD
Attending Neonatologist,
Director of Neurodevelopment &
Palliative Care
HCA University Hospital
Director ,
High Risk Infant Follow Up Clinic
Co-Founder, The Incubator -

Marketing & Communications Committee Co-Chair
Alex Zavala
Founder,
The NICU Dad &
The NICU Dad Podcast
PFAC Chair,
Dell Ascencion NICU Network
Family Leader,
Vermont Oxford Network -

Newsletter Committee Co-Chair
Robert Cicco, MD
Retired Neonatologist,
Pittsburgh, PA
Former Associate Director,
West Penn Hospital NICU -

Newsletter Committee Co-Chair
Morgan Kowalski
Program Manager,
Family-Centered Care Taskforce
Family Partner,
Golisano Children’s Hospital NICU at University of Rochester Medical Center
Executive Council
Family Partners
-

Fabiana Bacchini
Executive Director, Canandian Premature Babies Foundation
-

Lelis Bauzá Vernon, S.Q.I.L.
State Family Leader, Florida PQC
Editorial Board, AAP Publications
Clinical Advisor, AAP, SoNPM
Faculty Family, Vermont Oxford Network -

Latoya Blueford
Founder & President,
The Skylar Project -

Sahra Cahoon
Executive Director & Founder,
Love for Lily -

Jennifer Canvasser, MSW
Founder & Executive Director, NEC Society
-

Nishan Degnarain, MPA
Family Advisory Council Member,
California Perinatal Quality Care Collaborative -

Amy Finn
Director of Programs & Development, Project NICU
-

Molly Fraust-Wylie
NICU Family Program Manager
The Klarman Family NICU
Beth Israel Deaconess Medical Center -

Marybeth Fry, M.Ed.
NICU Family Care Coordinator, Akron Children’s Hospital
Faculty Family, Vermont Oxford Network -

Erika Goyer, BA
Director of Communications, National Perinatal Association
-

Yamile Jackson, PhD, PE, PMP
CEO, Nurtured by Design
-

Mia Malcolm, BS, CDFT
Diversity, Equity, Inclusion, & Belonging Facilitator and Consultant
-

Necole McRae
Founder, Free2Read
Vice President, GloPreemies
Family Advisory Council, CPQCC
Patient-Family Advisory Council, NEC Society -

Erika Mendence
NICU Patient and Family Support Specialist,
Children’s Mercy Kansas City -

Katrina Moline
Executive Director, Hand to Hold
-

Kimberly Novod
Founder & Executive Director, Saul’s Light Foundation
-

Betsy Pilon
Executive Director, Hope for HIE
-

Elizabeth Simonton, JD
Co-Founder & Executive Director, ICU baby
-

Alex Zavala
Founder, The NICU Dad & The NICU Dad Podcast
PFAC Chair, Dell Ascencion NICU Network
Family Advisor, Vermont Oxford Network
Executive Council
Healthcare Partners
-

Daphna Barbeau, MD
-

Jessi Barnes, MSN, RN, RNC-NIC, NPD-BC, C-ELBW
-

Marsha Campbell-Yeo, RN, BN, NNP-BC, PhD, FAAN
-

Robert Cicco, MD
-

Mary Coughlin, MS, NNP, NCC-E
-

Jessica Daigle, MD
-

Jessica Fry, MD
-

Christy Gliniak, PhD, OTR/L, CNT, CPXP, NTMTC
-

Mitchell Goldstein, MD
-

Luann Jones, DNP, APRN, NNP-BC, NE-BC
-

Henry Lee, MD
-

Lily Lou, MD, FAAP
-

Kerri Machut, MD
-

Angelica Moreyra, PsyD
-

Nicole Nyberg, MSN, APRN, NNP-BC
-

Dharshi Sivakumar, MD
-

Vincent Smith, MD, MPH
-

Robert White, MD
-

Emily Whitesel, MD
Organizational Partners
Family-Centered Care Taskforce Phase 3 work supported by a grant from Genentech, a member of the Roche Group & partially funded by Prolacta Bioscience Foundation. 2023 Gravens Conference luncheon supported by an independent educational grant by Chiesi USA, Inc.
Spotlight
Erika Goyer!
Learn more about our esteemed
Family & Healthcare Partners!